Dementia care and rehabilitation in India

Authors

  • Subhash Das Professor, Department of Psychiatry, North Eastern Indira Gandhi Regional Institute of Health and Medical Sciences (NEIGRIHMS), Shillong, India
  • Thejus BR Senior Resident, Department of Psychiatry,North Eastern Indira Gandhi Regional Institute of Health and Medical Sciences (NEIGRIHMS), Shillong, India

Abstract

Dementia, characterized by progressive cognitive decline and associated behavioural symptoms, presents a significant and growing challenge globally and in India. This review highlights key aspects of dementia care and rehabilitation within the Indian context. It also highlights the wide variation in prevalence rates, the course of the disease, and its impact on functionality. Comprehensive management strategies, including pharmacological treatments like cholinesterase inhibitors and non-pharmacological interventions, are discussed alongside the critical role of caregivers. Rehabilitative measures, including gait training, fall prevention strategies, and assistive technologies, are emphasized for improving patient outcomes. The paper also explores India’s limited resources and infrastructure, including day-care centres, residential services, and community-based rehabilitation, underscoring the need for an inclusive national dementia policy. By addressing gaps in care and empowering caregivers, this article advocates for a holistic, culturally relevant approach to dementia care and rehabilitation in India.

References

World Health Organization. The ICD‐10 classification of mental and behavioural disorders: clinical descriptions and diagnostic guidelines. Geneva: World Health Organization; 1992.

Geldmacher DS, Whitehouse PJ. Evaluation of dementia. N Engl J Med. 1996;335(5):330-6

Alzheimer’s and Related Disorders Society of India. The Dementia India Report 2010.

World Health Organization. Dementia [Internet]. Geneva: World Health Organization; 2020 Sep 21 [cited 2021 Aug 25]. Available from: www.who.int/ news-room/fact-sheets/detail/dementia.

Prince M, Bryce R, Albanese E, Wimo A, Ribeiro W, Ferri CP. The global prevalence of dementia: a systematic review and meta-analysis. Alzheimers Dement. 2013;9(1):63-75.

Krishnamoorthy ES, Misra V, Srivatsa VG. Dementia in India. In: Wadia NH, Khadilkar S, editors. Neurological practice: An Indian perspective. 2nd ed. India: Elsevier; 2014.

Prina AM, Acosta D, Acosta I, Guerra M, Huang Y, Jotheeswaran AT, et al. Cohort Profile: The 10/66 study. Int J Epidemiol. 2017;46(2):406-406i. doi: 10.1093/ije/dyw056

Choudhary A, Ranjan JK, Asthana HS. Prevalence of dementia in India: A systematic review and meta-analysis. Indian J Public Health. 2021;65:152-8.

Lee J, Meijer E, Langa KM, Ganguli M, Varghese M, Banerjee J, et al. Prevalence of dementia in India: National and state estimates from a nationwide study. Alzheimers Dement. 2023;19(7):2898-2912. doi: 10.1002/alz.12928

National Institute on Aging. What is dementia? Symptoms, types, and diagnosis [Internet]. Available from: https://www.nia.nih.gov/health/alzheimers-and-dementia/what-dementia-symptoms-types-and-diagnosis.

Hafiz R, Alajlani L, Ali A, Algarni GA, Aljurfi H, Alammar OAM, et al. The latest advances in the diagnosis and treatment of dementia. Cureus. 2023;15(12):e50522. doi 10.7759/cureus.50522

Shaji KS, Sivakumar PT, Rao GP, Paul N. Clinical practice guidelines for management of dementia. Indian J Psychiatry. 2018;60:312-28.

Brodaty H, Donkin M. Family caregivers of people with dementia. Dialogues Clin Neurosci. 2009;11(2):217-28.

Chaudhuri JD, Das S. The role of caregivers in the management of Alzheimer's disease: Examples from Asian countries. Sultan Qaboos Univ Med J. 2006;6(2):11-8.

Kumar CTS, Shaji KS, Varghese M, Nair MKC (Eds) Dementia in India 2020. Cochin: Alzheimer’s and Related Disorders Society of India (ARDSI), Cochin Chapter, 2019.

Gupta A, Prakash NB, Sannyasi G. Rehabilitation in dementia. Indian J Psychol Med. 2021;43(5 Suppl):S37-47.

Dias A, Patel V. Closing the treatment gap for dementia in India. Indian J Psychiatry. 2009 Jan;51 Suppl 1(Suppl1):S93-7.

Thomas PT, Rajagopalan J, Hurzuk S, Ramasamy N, Pattabiraman M, De Poli C, et al. Pathways to care for people with dementia in India: An exploratory study using case vignettes. Dementia (London). 2024;23(3):493-511.

Kumar CS, George S, Kallivayalil RA. Towards a dementia-friendly India. Indian J Psychol Med. 2019 Sep 5;41(5):476-81.

Alzheimer's Association. Adult day centers [Internet]. Available from: https://www.alz.org/help-support/ caregiving/care-options/adult-day-centers.

Ministry of Health and Family Welfare, Government of India. Non-communicable diseases [Internet]. Available from: https://mohfw.gov.in/?q=major-programmes/Non-Communicable-Diseases/Non-Communicable-Diseases-1

National Institute of Mental Health and Neurosciences (NIMHANS). Patient information [Internet]. Available from: https://vmsnimhans.in/patient-info/#1604056566984-d9624236-5c17.

Government Medical College and Hospital (GMCH). Overview [Internet]. Available from: https://gmch.gov.in/overview-12.

Times of India. Karnataka declares dementia as public health priority [Internet]. Available from: https://timesofindia.indiatimes.com/city/bengaluru/ktaka-declares-dementiaas-public-health-priority/articleshow/103851016.cms.

Times of India. Studio launch today to help dementia patients [Internet]. Available from: https://timesofindia.indiatimes.com/city/bengaluru/studio-launch-today-to-help-dementia-patients/articleshow/114435865.cms.

Bangalore Mirror. Revolutionizing dementia care: NIMHANS launches innovative dementia design studio [Internet]. Available from: https://bangaloremirror.indiatimes.com/bangalore/others/revolutionizing-dementia-care-nimhans-launches-innovative-dementia-design-studio/articleshow/114438197.cms.

Anirudhan A, Rodrigues HC, Issac TG. India's need for a national dementia policy. Lancet Psychiatry. 2025 Epub ahead of print. doi: 10.1016/S2215-0366(24)00444-9.

PRS Legislative Research. Mental Healthcare Act, 2017 [Internet]. Available from: https://prsindia.org/files/bills_acts/ acts_parliament/2017/the-mental-healthcare-act,-2017.pdf

World Health Organization. International Classification of Diseases for Mortality and Morbidity Statistics (11th Revision) [Internet]. Available from: www.who.int/ publications/i/item/9789241515863

Downloads

Published

16-03-2025

How to Cite

Das, S. ., & Thejus, B. R. (2025). Dementia care and rehabilitation in India. Indian Journal of Psychiatric Social Work, 1–6. Retrieved from http://pswjournal.org/index.php/ijpsw/article/view/693

Issue

Section

Editorial