Effectiveness of Psychoeducation on Psychological Wellbeing and Self-Determination in Key Caregivers of Children with Intellectual Disability

Authors

  • Remesh Krishnan M.Phil Scholar, Psychiatric Social Worker, Aarupadai Veedu Medical College & Hospital, Kirumampakkam Puducherry, India
  • Daya Ram Director & Professor of Psychiatry, Central Institute of Psychiatry (CIP), Ranchi, India
  • Hridya V M MPhil Scholar, Department of Clinical Psychology, CIP, Ranchi, India
  • Santhosh AJ MPhil Scholar, Department of Clinical Psychology, CIP, Ranchi, India

DOI:

https://doi.org/10.29120/ijpsw.2018.v9.i1.54

Abstract

Introduction: For the parents to have a child with intellectual disability becomes the most traumatic experience of life which makes them unenthusiastic to accept the fact. Studies have mostly tended to focus on parental adjustment to their child’s disability and its correlates. There is little research examining interventions that aim to improve parents’ and children’s relationship or quality of life. This study aimed to see the effectiveness of psychoeducation in increasing the level of psychological well-being and self-determination of the caregivers of children with intellectual disability (ID). Methodology: A total of 20 caregivers of children with intellectual disability were purposively selected from the Central Institute of Psychiatry and Deepshika Institute of Child Development and Mental Health, Ranchi. They were assessed with General Health Questionnaire (GHQ-28), Ryff’s Psychological wellbeing scale, Family Interview for Stress and Coping in Mental Retardation (FISC-MR), Social Problem Solving Inventory (SPSI-R) and Self-determination scales before giving the psychoeducation. The psychoeducational module was developed especially for the caregivers based on the National Institute of Mental Health manual for Psychologists and Teachers, Counsellors manual for family intervention in mental retardation & Problem Solving therapy manual. This module was applied to them individually for the period of four weeks. The measures mentioned earlier were used again to assess the post treatment levels on the selected key caregivers. Results: Study identified a significant increase in the caregiver’s psychological well-being and self-determination levels after eight sessions of psychoeducational. Conclusions: Results suggested that psycho‐educational intervention is effective in increasing knowledge regarding the condition and in meeting the needs of the care givers.

There are very few culturally sensitive parent intervention practices directed to the key caregivers of children with intellectual disability and these practices should be enhanced.

Keywords: Intellectual disability, psychological wellbeing, self-determination, psychoeducation

References

Wechsler D. The Measurement of Adult Intelligence. Williams & Wilkins; 1944.

Girimaji SC. Clinical practice guidelines for the diagnosis and management of children with mental retardation. Indian Journal of Psychiatry. 2008:43-67.

Girimaji SC, Srinath S, Seshadri S, Krishna DS. Family interview for stress and coping in mental retardation (FISC-MR): A tool to study stress and coping in families of children with mental retardation. Indian journal of psychiatry. 1999 Oct; 41(4):341.

McLinden S. Mothers' and fathers' reports of the effects of a young child with special needs on the family. Journal of Early intervention. 1990 Jul; 14(3):249-59.

Margalit M, Ankonina DB. Positive and negative affect in parenting disabled children. Counselling Psychology Quarterly. 1991 Oct 1; 4(4):289-99.

Browne G, Bramston P. Stress and the quality of life in the parents of young people with intellectual disabilities. Journal of Psychiatric and Mental Health Nursing. 1998 Oct 1; 5(5):415-21.

Yau MK, Li-Tsang CW. Adjustment and adaptation in parents of children with developmental disability in two-parent families: A review of the characteristics and attributes. The British Journal of Development Disabilities. 1999 Jan 1; 45(88):38-51.

Kennedy M. Self-determination and trust: My experiences and thoughts. Self-determination across the life span: Independence and choice for people with disabilities. 1996:35-47.

Wade C, Llewellyn G, Matthews J. Review of parent training interventions for parents with intellectual disability. Journal of applied research in intellectual disabilities. 2008 Jul 1;21(4):351-66.

Toseland RW, Smith T. Supporting caregivers through education and training. Washington, DC: Administration on Aging, National Family Caregiver Support Program. 2001.

Pusey H, Richards D. A systematic review of the effectiveness of psychosocial interventions for carers of people with dementia. Aging & mental health. 2001 May 1; 5(2):107-19.

Lovett MW, Steinbach KA, Frijters JC. Remediating the core deficits of developmental reading disability: A double-deficit perspective. Journal of learning disabilities. 2000 Jul;33(4):334-58.

Sanders MR, Turner KM. Reflections on the challenges of effective dissemination of behavioural family intervention: Our experience with the Triple P–Positive Parenting Program. Child and Adolescent Mental Health. 2005 Nov 1; 10(4):158-69.

Goldberg D. Manual of the general health questionnaire. NFER Nelson; 1978.

D'Zurilla TJ, Nezu AM, Maydeu-Olivares A. Social Problem-solving Inventory--revised (SPSI-R). Multi-Health Systems; 2002.

Peshawaria R. Behavioural approach in teaching mentally retarded children. A manual for teachers. Secunderabad: National Institute for the Mentally Handicapped. 1992.

Madhavan T, Kalyan M, Naidu S, Peshawaria R, Narayan J. Mental retardation: a manual for psychologists. National Institute for the Mentally Handicapped. Secunderabad-500011, AP India. Printed by New Era Printpacks, Secunderabad-500017. 1989; 145.

Nezu AM, Nezu CM, D'Zurilla T. Problem-solving therapy: A treatment manual. Springer Publishing Company; 2012 Dec 11.

Esdaile SA, Greenwood KM. A comparison of mothers' and fathers' experience of parenting stress and attributions for parent–child interaction outcomes. Occupational Therapy International. 2003 May 1;10(2):115-26.

Waisbren SE, Rones M, Read CY, Marsden D, Levy HL. Brief report: Predictors of parenting stress among parents of children with biochemical genetic disorders. Journal of pediatric psychology. 2004 Oct 1; 29(7):565-70.

Gamble J, Creedy D, Moyle W, Webster J, McAllister M, Dickson P. Effectiveness of a counseling intervention after a traumatic childbirth: a randomized controlled trial. Birth. 2005 Mar 1; 32(1):11-9.

Bourgeois MS, Schulz R, Burgio L. Interventions for caregivers of patients with Alzheimer's disease: A review and analysis of content, process, and outcomes. The International Journal of Aging and Human Development. 1996 Jul; 43(1):35-92.

Ilias K, Ponnusamy S, Normah CD. Parental stress in parents of special children: The effectiveness of psycho education program on parents’ psychosocial well beings. SimposiumSainsKesihatanKebangsaan. Kuala Lumpur. 2008:205-11.

Green J, Charman T, McConachie H, Aldred C, Slonims V, Howlin P, Le Couteur A, Leadbitter K, Hudry K, Byford S, Barrett B. Parent-mediated communication-focused treatment in children with autism (PACT): a randomised controlled trial. The Lancet. 2010 Jun 25; 375(9732):2152-60.

Downloads

Published

01-03-2018

How to Cite

Krishnan, R., Ram, D. ., Hridya, . V. M., & Santhosh , A. (2018). Effectiveness of Psychoeducation on Psychological Wellbeing and Self-Determination in Key Caregivers of Children with Intellectual Disability. Indian Journal of Psychiatric Social Work, 9(1), 4–11. https://doi.org/10.29120/ijpsw.2018.v9.i1.54

Issue

Section

Original Research Papers