Sexuality in Adolescents with Intellectual disability: Felt Needs of Parents
DOI:
https://doi.org/10.29120/ijpsw.2017.v8.i2.42Abstract
Introduction: Felt needs of primary caregivers of adolescents with intellectual disabilities (AWID) with regard to sexuality issues have been an under researched area. The present study aimed to develop scientific knowledge in this area. This study gave a better insight into the less spoken area of sexuality among adolescents with intellectual disability, especially in the Indian context.
Methodology: An exploratory design was adopted for this study which involved analysing the review of the literature, 20 unstructured interviews, 35 structured individual interviews, 10 key person interviews and 4 focus group discussions with 16 participants.
Result: The specific concerns of parents with regard to educating sexuality issues of their Intellectually Disabled adolescents were identified.
Conclusion: The findings emphasised the need for adequate knowledge attitude and practice among the parents in order to deal with the sexuality issues of adolescents with intellectual disability. This also laid the base for developing suitable tools and intervention programs for this population.
Keywords: Adolescents, sexuality, intellectual disability, needs, parents
References
Bailey DB, Blasco PM, Simeonsson RJ. Needs Expressed by Mothers and Fathers of Young Children with Disabilities. American Journal on Mental Retardation 1992; 97:1-10.
Katz G, Lazcano-Ponce E. 2008. Sexuality in Subjects with Intellectual Disability: An Educational Intervention Proposal for Parents and Counselors in Developing Countries. Salud Publica Mex 2008; 50(2): S239-S254.
Rao GL. Education of Person with Intellectual Disabilities in India. Saudi Publication Mex 2008; 50(2): 205-212.
Dunst CJ, Leet HE. Measuring the Adequacy of Resources in Households in Young Children. Child: Care Health and Development 1987;13(2): 111-25.
Bailey DB. Collaborative Goal Setting with Families: Resolving Differences in Values and Priorities for Services. Topics in Early Childhood Education 1987; 7: 59-71.
Eastgate G, Scheermeyer E, Driel MLV, Lennox NG. Intellectual disability, Sexuality and sexual abuse prevention A study of Family Members and Support Workers. Australian Family Physician 2012; 41(3): 135-39.
Peshawaria R, Venkatesan S, Menon DK. Consumer Demand of Services by
Parents of Mentally Handicapped Individuals. Indian Journal of Disability and Rehabilitation 1988; 2: 43-57.
Shea and Bauer, 1988 Consumer Demand of Services by Parents of Mentally Handicapped Individuals. Indian Journal of Disability and Rehabilitation 1988; 2: 43-57.
Gowen JW, Christy DS, Spading J. Information Needs of Parents of Young Children with Special Needs. Journal of Early Intervention 1993; 17(2): 194-210.
Channabasavanna SM, Bhatti RS, Prabhu LR. A Study of Attitudes of Parents towards the Management of Mentally Retarded Children. Child Psychiatry Quarterly 1985; 18(2): 44-7.
Hariassara M. Developmentally Handicapped Child in the Family: Parent Perception, Attitudes and Their Participation in the Programme. Mental Health Review 1981; 1(2): 55-60.
Chaturvedi SK, Malhotra S. A follow-up Study of Mental Retardation Focusing on Parental Attitudes. Indian Journal of Psychiatry, 1984; 26(4): 370-376.
Upadhyaya GR, Havalappanavar NB. 2008, Grandparental Support for Parents of Mentally Retarded Children. Journal of the Indian Academy of Applied Psychology 2008; 34(1): 137-141.
Sheshadri M, Verma VK, Verma SK, Prasad, D. Impact of a Mentally Handicapped Child on the Family. Indian Journal of Clinical Psychology 1983; 10: 473- 478.
Sequiera EM, Rao PM, Subbukrishna DK, Prabhu GG. 1990 Perceived Burden and Coping Styles of Mothers of Mentally Handicapped. National Institute of Mental Health and Neuro Sciences (NIMHANS) Journal 1990; 8(1): 63-67.
Tangri P, Verma P. 1992. A Study of Social Burden Felt by Mothers of Handicapped Children. Journal of Personality and Clinical Studies 1992; 8(1&2): 117-120.
Chaturvedi SK, Malhotra S. Treatment Seeking Behaviour of Parents of Mentally Retarded Children. Indian Journal of Clinical Psychology 1982; 9(2): 211-216.
Peshawaria R, Menon DK. Needs of the Families of Mentally Handicapped Children. Indian Journal of Disability and Rehabilitation 1991; 5(1): 69- 72.
Singh TK, Indla V, Indla RR. Impact of Disability of Mentally Retarded Persons on Their Parents. Indian Journal of Psychological Medicine 2008; 30(2): 98-104.
Burton- Smith Burton-Smith R, McVilly KR, Yazbeck M, Parmenter TR, Tsutsui T. Service and Support Needs of Australian Carers Supporting a Family Member with Disability at Home. Journal of Intellectual & Developmental Disability 2009; 34 (3): 239-247.
Sahay A, Prakash J, Khaique A, Kumar P . Parents of Intellectually Disabled Children: A Study of Their Needs and Expectations. International Journal of Humanities and Social Science Invention 2013; 2(7): 01-08.
Brantlinger E. 1983. Measuring Variation and Change in Attitudes of Residential Care Staff toward the Sexuality of Mentally Retarded Persons. Mental Retardation 1983; 21(1): 17- 22.
Johnson PR, Davies R. 1989. Sexual Attitudes of Members of Staff, The British Journal of Mental Subnormality 1989; 35(68): 17-21.
Mercier M, Delville J, Collignon JL .Sexuality and Mental Disability. European Journal on Mental Disability 1994; 1(1): 24-30.
Karellou J. Parents’ Attitudes towards the Sexuality of People with Learning Disabilities in Greece. Journal on Developmental Disabilities 2007; 13(3): 73- 88.
Katoda H. Parents’ and Teachers’ Praxes of and Attitudes to the Health and Sex Education of Young People with Mental Handicaps: A Study in Stockholm and Tokyo. Journal of Intellectual Disability Research 1993; 37: 115-129.
Conod L, Servais L. Sexual Life in Subjects with Intellectual Disability. Salud Publica de Mexico 2008; 50(2): S230-S238.
Kerbage H, Richa S. Abord De La Vie Affective Et Sexuelle Des Déficients Intellectuels (An Approach to the Sexual and Emotional Life of People with Intellectual Disability). Neuropsychiatrie De L'enfance Et De L'adolescence 2011; 59: 478–83.
Deb S, Thomas, M, Bright C. Mental Disorder in Adults with Intellectual Disability. The Rate of Behaviour Disorders among a Community-Based Population Aged Between 16 and 64 years. Journal of Intellectual Disability Research 2001; 45(6): 506–514.
Australian Institute of Health and Welfare.Disability in Australia: Intellectual Disability Canberra: AIHW 2008; Bulletin no. 67.
Peshawaria R, Menon DK, Ganguly R, Roy, S, Pillay RPRS, Gupta A. Understanding Indian families having persons with mental retardation. Secunderabad: The National Institute for the Mentally Handicapped. 1995.
Mc Carthy M. Sexuality and Women with Learning Disabilities. London: Jessica Kingsley Publishers. 1999.
Swain J, Thirlaway C. Just when you think you got it all sorted…: Parental Dilemmas In Relation to the Developing Sexuality of Young Profoundly Disabled People. British Journal of Learning disabilities 1996; 24(2): 58- 64.
Neufeld JA, Klingbeil F, Bryen DN, Silverman B, Thomas A. 2002. Adolescent Sexuality and Disability. Physical Medicine and Rehabilitation Clinics of North America 2002; 13:857–873.
McCabe MP. Sex Education Programs for People with Mental Retardation, Mental Retardation Journal 1993; 31(6): 377-87.
Cuskelly M, Gilmore L. Attitudes to Sexuality Questionnaire (Individuals with an Intellectual Disability): Scale Development and Community Norms. Journal of Intellectual and Developmental Disability 2007; 32(3): 214-21.
Rose J, Jones C. Working with Parents. In A. Craft (Ed.), Practice Issues in Sexuality and Learning Disabilities. London: Routledge. 1994. pp 23- 48.
Tepper MS. Sexuality and Disability: The Missing Discourse of Pleasure. Sexuality and Disability 2000; 18 (4): 283-290.
Healy E, McGuire BE, Evans DS, Carley SN. Sexuality and Personal Relationships for People with an Intellectual Disability. Part I: Service-User Perspectives. Journal of Intellectual Disability Research 2009; 53: 905–12.
Kelly G, Crowley H, Hamilton C. Rights, Sexuality and Relationships in Ireland: ‘It’d Be Nice to be Kind of Trusted’. British Journal of Learning Disability 2009; 37: 308–15.
Ward K, Bosek R, Trimble E. Romantic Relationships and Interpersonal Violence Among Adults with Developmental Disabilities. Intellectual and Developmental Disabilities 2010; 48(2): 89–98.
Swango-Wilson A. 2008; Caregiver Perception of Sexual Behaviours of Individuals with Intellectual Disabilities. Sexuality and Disability 2008; 26(2): 75–81.
Hayashi M, Arakida M, Ohashi K. The Effectiveness of a Sex Education Program Facilitating Social Skills for People with Intellectual Disability in Japan. Journal of Intellectual and Developmental Disability 2011; 36(1): 11–19.
Tsutsumi AA. Sexual Health and Behaviour of Mentally Retarded Pupils in Japan. US-China Education Review 2007; 6(10): 61-66.
Galea J, Butler J, Iacono T. The Assessment of Sexual Knowledge in People with Intellectual Disability. Journal of Intellectual and Developmental Disability 2004; 29(4): 350- 365.
Szollos AA, McCabe MP. The Sexuality of People with Mild Intellectual Disability: Perceptions of Clients and Caregivers. Australian and New Zealand Journal of Developmental Disabilities 1995; 20(3): 205-222.
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