Types of coping as a determinant of quality of life of mothers of children with intellectual disability and autism

Authors

  • Shahzadi Malhotra Assistant Professor, Department of Clinical Psychology, CNBC Hospital, Delhi, India
  • Waheeda Khan Professor & Dean Faculty of Behavioural Health Science, SGT University, Gurugram, Delhi, India
  • Manjeet Singh Bhatia Professor & Head, Department of Psychiatry, UCMS & GTB Hospital, Delhi, India

DOI:

https://doi.org/10.29120/ijpsw.2020.v11.i1.195

Abstract

Background: It is well established that caregivers of children with developmental disabilities experience greater stress than caregivers of children without developmental disabilities. However, the experience of stress is dependent on the types of coping strategies that are used to manage stress. Such stress also affects the quality of life (QoL) of parents. Thus, parents of children with disabilities have specific mental health needs which play an important role in affecting their own and their child's QoL. Aim: To study coping as a determinant of QoL of mothers of children with intellectual disability (ID) and children with autism. Methodology: The sample consisted of 100 mothers of children (between 5-12 years of age) selected with purposive sampling, having an ID (n=50) or autism (n=50), diagnosed as per ICD-10 DCR criteria. In addition, the diagnostic assessment was also based on psychometric testing. Types of coping were assessed using Ways of Coping Questionnaires. QoL of caregivers was assessed by WHOQoL-BREF. Result: Multiple regression analysis revealed that seeking social support and planful problem solving were significant determinants of all four domains of QoL. Escape avoidance was a significant determinant of physical, psychological and social domains of QoL of mothers. Positive reappraisal significantly predicted the psychological and social domains of QoL in mothers. Conclusion: Types of coping are the determinant of  QoL of mothers of children with ID and autism.

Keywords: Quality of life, coping, autism

References

Dardas LA, Ahmed MM. Quality of life among parents of children with autistic disorder: a sample from the Arab world. Res Dev Dis 2014;35(2):278-87.

Hart M, Kelley M. Fathers' and mothers' work and family issues as related to internalizing and externalizing behavior of children attending daycare. J Family Stress 2006;27:252-70.

Pesonen A, Raikkonen K, Heinonen K, Komsi N, Jarvenpaa A, Strandberg T. A transactional model of temperamental development: Evidence of a relationship between child temperament and maternal stress over five years. Social Develop 2008;17:326-40.

WHOQOL Group. Study protocol for the World Health Organization project to develop a quality of life assessment instrument (WHOQOL). Qual Life Res 1995;2:153-59.

World Health Organization. The World Health Report 2001- Mental Health: New Understanding, Geneva, Switzerland 2001.

Barry MM. Well being and life satisfaction as components of quality of life in mental disorders. In Katsching HF, Sartorious N. (Ed.s). Quality of Life of Mental Disorders. Chicester, UK: John Willey & Sons 1997 (pp. 31-42).

World Health Organization. ICD10 DCR classification of mental and behavioural disorders: Diagnostic criteria for research. Oxford university press, Oxford 1994.

Goel SK, Sen AK.Mental Retardation and Learning. National Psychological Corporation, Agra 1984.

Malin AJ. Vineland Social Maturity Scale and Manual: Indian Adaptation. Saraswathipuram, Mysore, Karnataka, India: Swayamsiddha Prakashan 1965.

Schopler E, Reicher RJ, Renner BR. The childhood autism rating scale (CARS). USA: Western Psychological Services 1980.

Folkman S, Lazarus RS.The manual for Ways of Coping Questionnaire. Palo Alto, CA: Consulting Psychological Press 1988.

Skevington SM, Lotfy M, O’Connell KA. The World Health Organization’s WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A Report from the WHOQOL Group. Qual Life Res 2004;13:299-310.

Saxena S, Chandiramani K, Bhargava R. WHOQOL-Hindi: a questionnaire for assessing quality of life in health care settings in India. World Health Organization Quality of Life. National Medical Journal India 1998;11(4):160-5.

Kuhlthau K, Payakachat N, Delahaye J, Hurson J, Jeffrey M, Kovacs E, J. Quality of life for parents of children with autism spectrum disorders. Research in Autism Spectrum Disorders 2014;8(10):1339-50.

Malhotra S, Khan W, Bhatia MS. Quality of Life of Parents having Children with Developmental Disabilities. Delhi Psych J 2012;15(1):171-6.

Vasilopoulou E, Nisbet J. The quality of life of parents of children with autism spectrum disorder: A systematic review. Res Develop Disabilities 2016;35(2):278-87.

Smith L, Seltzer MM, Tager-Flusberg H, Greenberg JS, Carter AS. A comparative analysis of well being and coping among mothers of toddlers and mothers of adolescents with ASD. J Autism Develop Dis 2008;38(5):876-89.

Hastings RP, Kovshoff H, Brown T, Ward NJ, Degli Espinosa F, Remington B. Coping strategies in mothers and fathers of preschool and school-age children with autism. Autism 2005;9:377-91.

Mausbach' BT, Aschbacher K, Patterson TL, Ancoli-Israel S, Von Känel R, Mills PJ, Dimsdale JE, & Grant I. Avoidant coping partially mediates the relationship between patient problem behaviours and depressive symptoms in spousal Alzheimer caregivers. Am J Ger Psych 2006;14(4):299-306.

Downloads

Published

10-01-2020

How to Cite

Malhotra, S., Khan, W. ., & Bhatia, M. S. . (2020). Types of coping as a determinant of quality of life of mothers of children with intellectual disability and autism. Indian Journal of Psychiatric Social Work, 11(1), 4–11. https://doi.org/10.29120/ijpsw.2020.v11.i1.195

Issue

Section

Original Research Papers