HIV Disclosure: Parental Perceptions in Disclosing Perinatally HIV Infected Children about their HIV Positive Status
DOI:
https://doi.org/10.29120/IJPSW.2017.v8.i2.30Abstract
Background: The increased access to antiretroviral treatment resulted in increased survival rates among the children infected with HIV/AIDs and also led to the improved quality of life of sero-positive children. The chronic medical conditions in the paediatric population pose a range of potential psychosocial challenges and also disclosure of HIV status to the positive children. The current study aimed to understand the Parental Perceptions on Disclosure of diagnosis to their HIV Positive Children. Methodology: For this purpose the researcher used qualitative method in which 13 parents were interviewed to understand the parental perception about disclosure of HIV status to their perinatally infected children and challenges in disclosure. Results and Conclusion: The results were analyzed used thematic approach. The findings of the study showed lack of understanding of importance of disclosing HIV status to their positive children, fears of post disclosure impact and lack of consensus among few parents regarding who should disclose HIV status to the infected children and adolescents.
Keywords: Children, disclosure, HIV/AIDS, perinatal, parents
References
AIDS. Global fact sheet. HIV /AIDS. 2014. Last retrieved 24th June 2016. http://www.aids2014.org/webcontent/file/AIDS2014_Global_Factsheet_April_2014.pdf/:.
UNAIDS. Gap report. Joint United Nations Programme on HIV/AIDS, UNAIDS;2014.
NACO. Technical report India. HIV estimates. New Delhi;2012.
Vreeman RC, Gramelspacher AM, Gisore PO, Scanlon ML, Nyandiko WM (2013) Disclosure of HIV status to children in resource-limited settings: a systematic review. Journal of the International AIDS Society, 2013;16:18466.
AAP. Disclosure of illness status to children and adolescents with HIV infection. American Academy of pediatrics committee on paediatrics. AIDS. Pediatrics 1999; 103(1), 164-166.
Blasini I, Chantry C, Cruz C, Ortiz L, Salabarría I, Scalley N, Matos B, Febo I, Diaz C. Disclosure model for pediatric patients living with HIV in Puerto Rico: design, implementation, and evaluation. Journal of Developmental & Behavioral Pediatrics. 2004 Jun 1;25(3):181-9.
Murphy DA et al. Pilot trial of a disclosure intervention for HIV+ mothers: The TRACK program. Journal Consultant Consulting and Clinical Psychology 2011;79(2): 203-214.
Xu T, Wu Z, Rou K, Duan S, Wang H. Quality of life of children living in HIV/AIDS-affected families in rural areas in Yunnan. China. AIDS Care 2010; 22(3): 639.
Powell RA, Single HM. Focus groups. Inter Journal of Quality in Health Care, 1996;8 (5):499-504.
Glaser BG, Strauss AL. The discovery of grounded theory: Strategies for qualitative research. Transaction publishers; 2009 Aug 30.
Giacomet V, Albano F, Starace F, de Franciscis A, Giaquinto C. Adherence to antiretroviral therapy and its determinants in children with human immunodeficiency virus infection : a multicentre, national study. Acta Paediatric 2003;92: 1398-1402.
Schrimshaw EW Siege K. HIV infected mothers’ disclosure to their un-infected children: Rates, reasons and reactions. J Social Peers Relationship 2002; 19(1), 19-43.
Kuczmarski RJ, Ogden CL, Guo SS, Grummer-Strawn LM, Flegal KM, Mei Z, Wei R, Curtin LR, Roche AF, Johnson CL. 2000 CDC Growth Charts for the United States: methods and development. Vital and health statistics. Series 11, Data from the national health survey. 2002 May(246):1-190.
Kallem S, Renner L, Ghebremichael M, Paintsill. Prevalence and patterns of disclosure of HIV status in HIV infected children in Ghana. AIDS Behaviors 2011; 15(6): 1121-1127.
De Baets AJ, Sifovo S, Parsons R, Pazvakavambwa IE. HIV and discussions about grief with Shona children: A comparison between health care workers and community members in Eastern Zimbabwe. Social Science Medi. 2008; 66(2): 479-491.
Downloads
Published
How to Cite
Issue
Section
License
Copyright (c) 2021 Indian Journal of Psychiatric Social Work
This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.
