nxiety Depression and Burden among the Caregivers of Persons with Neurological Illness

Authors

  • Anil Kumar Roy Dept. of Psychiatric Social Work (PSW), Lokopriya Gopinath Bordoloi Regional Institute of Mental Health, Tezpur, Assam, India
  • Nilesh Maruti Gujar PhD Scholar, Dept. of PSW, Lokopriya Gopinath Bordoloi Regional Institute of Mental Health, Tezpur, Assam, India
  • Arif Ali Assistant Professor, Department of PSW, Lokopriya Gopinath Bordoloi Regional Institute of Mental Health, Tezpur, Assam, India
  • Utpal Borah Physiotherapist, Centre of Rehabilitation Sciences Lokopriya Gopinath Bordoloi Regional Institute of Mental Health, Tezpur, Assam, India

DOI:

https://doi.org/10.29120/ijpsw.2018.v9.i2.106

Abstract

Background: Studies have shown that caregivers of the persons with neurological illness have high levels of psychological distress, depression and caregiver’s burden. The aim of the study was to find out anxiety, depression and caregiver’s burden among the caregivers of persons with neurological illness (PWNI). Method: Thirty caregivers of PWNI attending the Centre of Rehabilitation Sciences, LGB Regional Institute of Mental Health, Tezpur, Assam were selected using purposive sampling technique for the present study. Socio-demographic and clinical data sheet, Zarit Burden Interview Scale and The Hospital Anxiety and Depression Scale were used. Results: The results shown that in Hospital Anxiety and Depression Scale, 26.6% of the caregivers’ scores were in the abnormal range in the domain of depression. While in the domain of anxiety, 16.6% scored in the abnormal range. In Zarit Burden of Scale, 13.3% of the caregivers were having little or no burden, 26.6% of the caregivers were having mild to moderate level of burden, 20% were having moderate to severe burden and 30% were having a severe burden of care. Care burden has significant positive correlation with depression (r= .124, p≤ 0.01 and anxiety (r= .124, p≤ 0.05). Conclusion: Caregivers of PWNI have been found to be at higher risk of mental health problems and care burden. The importance of addressing the burden of caregivers involved in the care of PWNI needs to be taken into consideration while providing treatment and rehabilitation of PWNI.

Keywords: Anxiety, depression, burden, neurological illness

References

Torti Jr FM, Gwyther LP, Reed SD, Friedman JY, Schulman KA. A multinational review of recent trends and reports in dementia caregiver burden. Alzheimer Disease & Associated Disorders. 2004 Apr 1; 18(2):99-109.

Wakabayashi C, Donato KM. Does Care giving Increase Poverty among Women in Later Life? Evidence from the Health and Retirement Survey. Journal of Health and Social Behavior. 2006 Sep; 47(3):258-74.

Robison J, Fortinsky R, Kleppinger A, Shugrue N, Porter M. A broader view of family care giving: effects of care giving and caregiver conditions on depressive symptoms, health, work, and social isolation. Journals of Gerontology Series B: Psychological Sciences and Social Sciences. 2009 Mar 24;64(6):788-98.

Savla J, Almeida DM, Davey A, Zarit SH. Routine assistance to parents: Effects on daily mood and other stressors. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences. 2008 May 1;63(3):S154-61.

Novack TA, Bergquist TF, Bennet G, Gouvier WD. Primary Caregiver Distress following severe head injury. Journal of Head Trauma rehabilitation 1991; 6(4): 69-77.

Rappaport M, Herrero-backe, C, Rappaport ML, Winterfield KM. Head injury outcome up to ten years later. Archives of Physical Medicine and Rehabilitation 1989; 70:885-92.

Verama R, Sharma S, Balhara YP, Mathur S. Anxiety and Depression among the Caregivers of patients with Neurological illness. Delhi Psychiatry Journal 2011; 14 :120-23

Peters M, Jenkinson C, Doll H, Playford ED, Fitzpatrick R. Carer quality of life and experiences of health services: a cross-sectional survey across three neurological conditions. Health and quality of life outcomes. 2013 Jun 25; 11(1):103.

Fredman L, Cauley JA, Hochberg M, Ensrud KE, Doros G. Mortality associated with care giving, general stress, and care giving related stress in elderly women: Results of caregiver study of osteoporotic fractures. Journal of the American Geriatrics Society. 2010 May 1;58(5):937-43.

Pakenham KI. Application of a stress and coping model to care giving in multiple sclerosis. Psychology, Health & Medicine. 2001 Feb 1;6(1):13-27.

Zarit S, Reever K, Boch-Peterson J. Relatives of the impaired elderly: Correlation of feelings of burden. Gerontologist, 1980; 20, 649-55.

Zigmond AS, Snaith RP. The hospital anxiety and depression scale. Acta Psychiatrica Scandinavica 1983; 67 (6): 361–70.

Balhara YPS, Verma R, Sharma S, Mathur S. A study of predictors of anxiety and depression among stroke patient–caregivers. Journal of Mid-Life Health. 2012;3(1):31-35.

Aronson KJ. Quality of life among persons with multiple sclerosis and their caregivers. Neurology. 1997 Jan 1;48(1):74-80.

Boschen K, Gargaro J, Gan C, Gerber G, Brandys C. Family interventions after acquired brain injury and other chronic conditions: a critical appraisal of the quality of the evidence. Neuro Rehabilitation. 2007 Jan 1; 22(1):19-41.

Vitaliano PP, Young HM, Russo J. Burden: A review of measures used among caregivers of individuals with dementia. The gerontologist. 1991 Feb 1;31(1):67-75.

Muscroft J, Bowl R. The impact of depression on caregivers and other family members: Implications for professional support. Couns Psychol Q. 2000; 13:117–34.

Gallagher D, Ni Mhaolain A, Crosby L, Ryan D, Lacey L, Coen RF, Walsh C, Coakley D, Walsh JB, Cunningham C, Lawlor BA. Dependence and caregiver burden in Alzheimer’s disease and mild cognitive impairment. American Journal of Alzheimer's Disease & Other Dementias. 2011 Mar; 26(2):110-4.

Grabel E, Adabbo R. Perceived burden of informal caregivers of a chronically ill older family member. The Journal of Gerontopsychology and Geriatric Psychiatry. 2011; 24(3), 143–54.

Northfield S, Nebauer M. The care giving journey for family members of relatives with cancer: how do they cope? The Clinical Journal of Oncology Nursing. 2010;14(5):567–77.

Turner B, Fleming J, Parry J, Vromans M, Cornwell P, Gordon C, Ownsworth T. Caregivers of adults with traumatic brain injury: the emotional impact of transition from hospital to home. Brain Impairment. 2010 Dec;11(3):281-92.

Anderson CS, Linto J, Stewart-Wynne EG. A population-based assessment of the impact and burden of caregiving for long-term stroke survivors. Stroke. 1995;26:843-9.

Brocklehurst JC, Andrews K, Morris PE, Richards B, Laycock PJ. Social effects of stroke. Soc Sci Med. 1981;15:35-9.

Pinquart, M, Sorensen, S. Correlates of physical health of informal caregivers: A meta-analysis. Journal of Gerontology2007;62 (B),126-37.

Schulz R, O'Brien AT, Bookwala J, Fleissner K. Psychiatric and physical morbidity effects of dementia care giving: prevalence, correlates, and causes. The Gerontologist. 1995 Dec 1;35(6):771-91.

Schulz R, Tompkins CA, Rau MT. A longitudinal study of the psychosocial impact of stroke on primary support persons. Psychol Aging. 1988; 3:131–41.

Smith A, Kobayashi K, Chappell N, Hoxsey D. The controversial promises of cholinesterase inhibitors for Alzheimer's disease and related dementias: A qualitative study of caregivers' experiences. Journal of Aging Studies. 2011 Dec 31;25(4):397-406.

Romero-Moreno R, Márquez-González M, Mausbach BT, Losada A. Variables modulating depression in dementia caregivers: a longitudinal study. International psychogeriatrics. 2012 Aug;24(8):1316-24.

Haley WE, Levine EG, Brown SL, Bartolucci AA. Stress, appraisal, coping, and social support as predictors of adaptational outcome among dementia caregivers. Psychology and aging. 1987 Dec;2(4):323.

Mittelman MS, Roth DL, Coon DW, Haley WE. Sustained benefit of supportive intervention for depressive symptoms in caregivers of patients with Alzheimer’s disease. American Journal of Psychiatry. 2004 May 1;161(5):850-56.

Pearlin LI, Mullan JT, Semple SJ, Skaff MM. Caregiving and the stress process: An overview of concepts and their measures. The gerontologist. 1990;30(5):583-94.

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Published

07-07-2018

How to Cite

Roy, A. K. ., Gujar, N. M. ., Ali, A. ., & Borah, U. . (2018). nxiety Depression and Burden among the Caregivers of Persons with Neurological Illness. Indian Journal of Psychiatric Social Work, 9(2), 63–67. https://doi.org/10.29120/ijpsw.2018.v9.i2.106

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Original Research Papers